Having an ileostomy was one of the most challenging aspects of my cancer treatment. When I first learned I’d be getting one, it felt overwhelming. The thought of having a bag attached to my abdomen, something that would alter how I managed basic bodily functions, was daunting. It wasn’t just the physical aspect that was tough—although learning how to care for it and managing leaks were difficult enough—it was also the emotional weight of feeling like I’d lost control over my own body.
The first few weeks were filled with trial and error. There were moments of frustration when I couldn’t get the appliance to fit correctly, or when a leak would happen at the worst possible time. I had to change my diet, always being cautious about what I ate and how it would affect me. Social outings became stressful, and I felt like I was always worrying about whether my bag was noticeable. But over time, I started to adapt. I found a routine, learned the ins and outs of managing the ileostomy, and even began to feel a sense of pride in how I handled this new reality. It wasn’t easy, but I kept telling myself that it was temporary.
After three months, I was able to have the ileostomy reversed and return to normal. That surgery was a huge milestone for me. It felt like I was getting a piece of myself back, both physically and emotionally. While the experience was difficult, it taught me a lot about resilience and patience. It reminded me that our bodies are capable of incredible things, and even in the face of immense challenges, we can adapt and persevere. Looking back, the ileostomy was a chapter of my journey that tested me in ways I didn’t expect, but it also made me stronger.
