How It Unfolded
The symptoms, treatments, setbacks, and turning points that shaped my life and Radiant14.
At 29, I was diagnosed with Stage IIA rectal cancer. Cancer was later found in my liver and lungs, making it Stage IV. This is the chronology of the treatment, setbacks, and life that followed.
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Why 14%?
Radiant14 takes its name from the roughly 14% five-year survival statistic associated with metastatic colorectal cancer when this journey began. Survival statistics continue to evolve as treatments and data improve, but the number remains part of where this story started.
The symptoms, treatments, setbacks, and turning points that shaped my life and Radiant14.
I began experiencing unusual symptoms, leading to a series of doctor visits.
A biopsy confirmed rectal adenocarcinoma with a KRAS mutation. My initial diagnosis was Stage IIA.
Started an aggressive chemotherapy regimen. Side effects included fatigue, nausea, and neuropathy.
Underwent daily radiation sessions to target the primary tumor in my pelvis.
Cedars-Sinai uses this advanced machine for highly precise treatments (SBRT/IMRT), minimizing damage to healthy tissue.
I underwent a low anterior resection to remove the primary tumor. Adjusting to life with a temporary stoma was difficult.
I had the ileostomy reversed, a major step toward rebuilding some sense of normalcy.
Ileostomy [il·e·os·to·my]: a surgical operation in which a piece of the ileum is diverted to an artificial opening in the abdominal wall.
After metastatic disease changed my diagnosis to Stage IV, I underwent radiofrequency ablation to destroy metastatic liver lesions.
This was the first of multiple image-guided ablation procedures for metastatic lung nodules found on scans.
The procedures were performed under general anesthesia while the doctor guided a probe into my lung using real-time CT imaging.
I suffered a pneumothorax following ablation. It was terrifying, but it was treated with a chest tube.
Air leaks into the space between lung and chest wall, pushing on the lung and making it collapse.
An acute thrombus was found in my brachial vein on the side associated with my chemo port, requiring anticoagulation.
A clot can break free and travel to the lungs, causing a potentially life-threatening pulmonary embolism.
Due to kidney complications, I began dialysis. Staying motivated through this added challenge was extremely difficult.
No Evidence of Disease
After several clear scans, I reached the moment I had long hoped for. A turning point from active treatment to survivorship.
JUL 2024
Welcomed my daughter, Cameryn, into the world, a bright light after years of darkness.
A PET/MRI scan revealed a local recurrence. Doctors proposed radical surgery, and I sought second and third opinions from specialists across multiple institutions and treatment disciplines.
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I am now participating in a clinical trial of botensilimab and balstilimab (BOT/BAL), an investigational immunotherapy combination developed by Agenus.
I am focused on the BOT/BAL clinical trial, building a meaningful life with my daughter, Cameryn, and sharing what this experience actually looks like. Radiant14 is where I document the uncertainty, the treatment, the progress, and what I wish I had known sooner.